Patient
Voices
In the videos below, people living with tenosynovial giant cell tumor (TGCT) share what it’s really like to navigate the physical, emotional, and social challenges that come with it.
The Challenge of
a Rare Disease
Meet Sydney, a patient living with TGCT*
Don’t miss The Challenge of a Rare Disease mini‑documentary, featuring Sydney’s personal journey with TGCT. Sponsored by Deciphera Pharmaceuticals and produced by BBC StoryWorks Commercial Productions, the film showcases Sydney’s perspective as a TGCT patient, scientist, and advocate. Living with TGCT has shaped both her personal experience and her work in the TGCT community.
*Sydney is an actual patient, compensated by Deciphera.
Everyone's experience with TGCT is unique. You should consult your doctor for medical advice or with any questions you have about living with TGCT.